Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts

Monday, April 8, 2013

Food Intolerance and a Glimpse of My Future...



I am four weeks into this experiment of no wheat (gluten) and no dairy (lactose). The changes were immediately noticeable. The puffiness of my face and hands is gone, I have lost almost 10 lbs., the headaches are gone, my mind is not clouded and I can think more clearly, I have more energy, and most importantly, I have less general pain. The future is looking good!

If you are saying at this point that you would never be able to give up bread or ice cream, believe me, I have said this too, fought against it for years, and finally decided it is not worth the hassle. When I have even a little dairy or wheat, it causes what is probably best described as spasms in my legs, arms and back. It wakes me up at night, and bothers me all day. It makes me weak, it irritates my feet and makes me off balance, and to put it nicely: cranky. There is sensitivity to light and sound, with headaches and at the very worst of it, it causes pain to wear clothing or shoes. Also, at this point, I should say that I did not make the connection until this month: some food = pain. I never talked about it with people, but I am wondering how many suffer unnecessarily with this? My doctor has been an amazingly patient with me and after systematically going through all of the tests and options, suggested just cutting out lactose, but I already knew that wheat bothered me, so I cut that out too. I would suggest that if you have trouble that can't be explained - talk with your doctor about cutting out gluten and lactose and just give it a try.

With the numerous products that are just as delicious as wheat and milk – for instance coconut or rice milk, buckwheat flour, rice crackers, hummus, goat cheeses, fruit, greens, vegetables, meats, etc.  I don’t feel deprived, I feel empowered that I can live a different life, and it is based on my decisions. I can educate myself and choose combinations of food and drink and test them to see if they work as fuel and have no negative side effects. I can also go out and have a couple of drinks and be sure that there will be no negative reaction.

Here are some guidelines I set for myself - these aren’t rules, and except for the first one, I will change them as needed:

Change my relationship with food: Food is fuel, I need fuel to live. If something isn’t going to be useful fuel, I’m not going to consume it. This is really all that matters. It may take a little more effort to prepare or think through a menu, but food intolerances and everything that goes with it is not going to define who I am, food is not a reward for some behavior, food is not the only way to enjoy spending time with people and it can be adapted for special meals and holidays. Food is not an escape from my problems.

With few exceptions, I will not be eating out. I’m giving this at least 6 months because I had lunch out Friday and was sick all weekend again with pain and headaches. I’m tired of wasting my time like that, in bed with a migraine. Not the quality of life I’m looking for, especially when I have seen the difference of having no headaches and less pain.

Packaged food is not an option. For the most part there are too many additives and coloring in packaged food anyway, and very few are without corn syrup, soy, gluten, or lactose.

Eat as much local and fresh food as possible. I’m not doing the raw food thing, and I will never be a vegetarian. I am unapologetic about my love of lamb and bacon. I have noticed that I feel better eating fresh food that is as close to its original form as possible. I can’t wait to start growing greens and veggies and am looking into a way to grow arugula and lettuce year round indoors. We are changing our shopping to be sure all of our meat and eggs are locally raised and purchased from the Mass Local Food Coop

Smaller portions and more variety:  I have never really had an “allergy” to anything – just sensitivities. That’s what puts me out of commission for days. I’ve had every test: celiac, lupus, etc. etc. and everything is negative. I have Fibromyalgia, I’ve had vitamin deficiency tests and my Vitamin D level is now up to normal. “Nothing” is ever wrong with me, so why do I never feel well and am sick every time I eat? So, to prevent myself from developing reactions to food, I have very small portions of a variety of things – spread out in smaller meals/snacks every couple of hours during the day, and then have a regular (but much smaller portion) of dinner with my family at night.

This is what my day looks like:

     6:00        Juice, vitamins, 1 coffee, and an egg (protein is crucial for my morning)
     
     9:00        coffee, diced fruit (variety of apple, pear, blueberry) and 1-2 Tablespoons of goat cheese. I never knew there were delicious goat cheeses like salt and pepper or orange-cranberry. I use the peppery one for savory (vegetables and salads) and orange-cranberry with fruit.
   
   11:00       rice crackers and hummus – vegetables and hummus
   
   12:30       vegetables roasted or steamed with ½ cup rice or sweet/red potato, salad with fruit, seeds, veggies, or leftovers of dinners, but two days after, not the next day. It seems that if I have leftovers the next day of something  that doesn’t bother me, it is too much, so I skip a day  or two.
     
     3:00       2 rice cakes with fruit spread (whole fruit/no sugar or corn syrup) and Tea
     
     6:00       Dinner is stir-fry, stew, curry, salad. We do a lot of stir-fry and stew substituting potato flakes for thickening and balsamic and spices for soy sauce. Of course, my favorite food is lamb Rogan Josh and that still stands as a great choice, as well as other curries. We cook turkey, chicken, lamb, beef, but use meat as a smaller part of the dish and vegetables as primary part. 
                 
                   With dinner or in the evening, a glass of wine or port.


I am looking forward to trying more baking with buckwheat - with coconut as my go to for milk. Also, I found a pizza dough recipe and can imagine a delicious pizza crust with sauce, veggies and goat cheese. Although tomato may be a once a week thing for awhile…I’m still working on this one.

It takes a little imagination and a lot of patience, but it’s so worth the quality of life that I can have in exchange for a little work.






Saturday, March 2, 2013

Choose Your Adventure


I haven’t written much about my health, or the incredible amount of time I have spent in the past few years figuring out why I just don’t feel well most of the time.

Fibromyalgia, food allergies, environmental allergies, asthma, bronchitis, various intolerances, etc. – It doesn’t matter what the name is, I will do anything at this point to be healthy and alert enough to enjoy my life, family, and friends and be able write every day.

After spending most of the last week with a wicked headache and generally feeling bad, I went to the doctor expecting to be told I had the flu or some infection. As with most of my visits, there is “nothing” wrong.  We decided that it is time to be lactose free. No dairy products, not a big deal really because I get sick almost immediately after eating anything with dairy now.  We also discussed being wheat free/gluten free eventually, cutting down on coffee to see if that helps, and a variety of other things along that line.

Rob and I decided last night to change our menu at home to shop and cook differently and start cutting out both lactose and gluten. I want to have a change now.  Coffee, I can easily cut back to a cup in the morning and drink tea when I want something hot to drink during the day. I don’t have a negative reaction to coffee, but I have been having trouble sleeping, so I see this as a smart move. It may change later.

As I finished talking about cutting down on coffee, our mail was delivered and there was a package from my friend Meg in Oregon. She sent me some great teas and a card for my birthday. Not only did it make me smile to get such a thoughtful gift, it was as if I had an instant reinforcement of my decision to drink tea instead of coffee. Sometimes life's gifts need to be really clear for me to see them!

Rob and I also went out for lunch at The Boynton and after staring at the menu forever, I was going to get a salad with grilled chicken, but Rob said, “Why don’t we each get a salad and split the order of ribs?” Brilliant idea! It made what seems to be a whole menu of “no” into something fun. It was a delicious lunch, and before we came home I bought a canister of ginger and licorice tea at the Wine Vine. This will travel easily and I can have something refreshing in the afternoon at work.
Ribs
Looking back at past posts, I realized I have never written about gardening to fulfill my desire to have a greater local access to foods that I can eat without feeling sick. Last summer it was so amazing to walk outside and have beauty and food right in our yard, and it changed me emotionally and physically to have that access. Until that time, I hadn’t realized exactly how much I personally, need to work outside in nature and grow food and plants.

I am choosing to look at this time of changes as an adventure. I will be healthy and won’t be feeling sick all the time. That’s the goal, so the path has to line up with that goal. This process is not impossible, but it does require a good amount of research, time and effort.

Most of us have something like this in our lives – it takes a bit more work to figure out and more effort to work through, but in the end these efforts are the bigger things that change the direction and add to the quality of our lives.

Even if I don't enjoy all of the details of what is happening now, I know it can change. I also know from experience that small steps or running, you get to the same destination. Sometimes a slower trip is necessary.

So here's to today ! =)



Teas